Today I wear Orange not because it will benefit me, but because it WILL benefit my loved ones, friends and those around the world who have never heard of CRPS, Complex Regional Pain Syndrome
Today I wear Orange to educate people of the symptoms and triggers to this disease that is progressively trying to take over my body and leaves me in excruciating pain on a daily basis.
Today I wear Orange because I went years without a diagnosis, years of Doctors telling me that I was crazy, that the pain was in my head and I don’t want the same thing to happen to you or your loved ones.
Today I wear Orange because my life has changed, my mobility has suffered and my career has been threatened.
Today I wear Orange for a rare disease that tells my brain that my pain is higher than amputation.
Today I wear Orange because I have been hospitalized five times and have been unable to work 4 months in the last year because my body literally feels like it is on fire.
Today I wear Orange as I have so lost many friends and a social life because I have been too sick to be a good friend.
Today I wear Orange because I don’t want others to experience the same relentless pain that causes me to cry almost every night.
Today I wear Orange because my medications cost more than a car payment each month and some of them make me sick but they must be taken.
Today I wear Orange because most days I do not have the stamina to cook any meals and I eat cereal for dinner almost every day.
Today I wear Orange because I am treated like a drug seeking criminal every time I end up in the Emergency Room due to uncontrollable pain.
Today I wear Orange because I can no longer take a quick shower, as the water feels like daggers in my feet.
Today I wear Orange for one of my best friends who also has CRPS and has been in a wheelchair for over a year & has such extreme nausea that she is unable to stay hydrated or keep food down.
Today I wear Orange as I proudly tell you I did not follow through on plans to end my life when the pain was too much for me to bear.
Today I wear Orange for those who were unable to live another day in flames.
Why do you wear Orange? #todayiwearorange