How to Survive CRPS/RSD Flares If you have CRPS/RSD you know that managing the daily pain is one of the toughest jobs that a person could have. Now add a flare on top of that and it often times knocks us down, throws us backward or derails ANYTHING we are trying to do in our… Continue reading How to Survive CRPS/RSD Flares
How to show your body compassion during your difficult moments of pain. Changing the narrative that we tell ourselves.
Finding Inspiration in Warriors: The day that my CRPS did not win Sometimes when harsh realities of the world and the pain within my body come crashing down on me; I can’t see any hope in the future. I feel that I am lost, stumbling in the dark trying to find a light. A match.… Continue reading Finding Inspiration in Warriors: The day that my CRPS did not win
CRPS is such an awful and mysterious disease. It affects each of us different and what may help one day will not help the next. This is in no way suggesting that if you suffer with CRPS that you should go out and join a gym. I am also not suggesting that I have all… Continue reading Things I have learned from CRPS in 39 days (after joining a gym)
Today I wear Orange not because it will benefit me, but because it WILL benefit my loved ones, friends and those around the world who have never heard of CRPS, Complex Regional Pain Syndrome Today I wear Orange to educate people of the symptoms and triggers to this disease that is progressively trying to take… Continue reading Today I wear Orange
Dear Warrior, I see you tonight as the moon rises and the world settles down to sleep. I see you lying ever so quiet in your most comfortable spot, trying to be just that… comfortable. But for many, the comfort does not come and neither will sleep. The fire within our body ramps up as… Continue reading Dear Warrior
Tonight as I finished a very long and active day, I ended my evening with a HUGE surprise…. (sorry the video is shaky, I was excited!) As Always: Much Metta, Kelly
My life is a giant shit storm right now. I haven’t written lately because facing these painful realities are sometimes more painful than the CRPS itself. This evening I decided to face my monsters and put on a suit of courage. I have to write to process what is happening with the destruction of my… Continue reading When My Happily Ever After Couldn’t Survive the Storm
Believe it or not; sometimes I forget I am sick. I forget that my body doesn’t allow me to do certain things or multiple things per day. I forget that a walk into the store to grab milk, may be the only thing I can do today or that driving a short distance can take… Continue reading RSVP: No. When my diagnosis makes me a bad friend
I remember the very first time one of my doctors mumbled the letters RSD as she tried to demystify why my feet would not heal and why I was in excrutiating pain. The letters themselves scared me. She said it was rare and that I probably didn’t have it. Weeks later another specialist confirmed I… Continue reading 10 things I wish I had known about CRPS/RSD when I was first diagnosed
The Invisible Warrior 