CRPS/RSD · Writings

Strong. Fierce. Me.

So the insurance had said no to a recent request for a Ketamine Infusion and apparently the medical/insurance world closes down during the holidays. As you know, I was devastated upon hearing that news. I was in fear of the unknown and felt that so many things were out of my control. (Read more here).… Continue reading Strong. Fierce. Me.

Coping Tools · CRPS/RSD

Dear Warrior

Dear Warrior, I see you tonight as the moon rises and the world settles down to sleep. I see you lying ever so quiet in your most comfortable spot, trying to be just that… comfortable. But for many, the comfort does not come and neither will sleep. The fire within our body ramps up as… Continue reading Dear Warrior

CRPS/RSD · Dealing with Pain · Ketamine

CRPS: A Moment With No Pain

Tonight as I finished a very long and active day, I ended my evening with a HUGE surprise…. (sorry the video is shaky, I was excited!)   As Always: Much Metta, Kelly

Uncategorized

When My Happily Ever After Couldn’t Survive the Storm

My life is a giant shit storm right now. I haven’t written lately because facing these painful realities are sometimes more painful than the CRPS itself. This evening I decided to face my monsters and put on a suit of courage. I have to write to process what is happening with the destruction of my… Continue reading When My Happily Ever After Couldn’t Survive the Storm

Coping Tools · CRPS/RSD · Dealing with Pain · Relationships

RSVP: No. When my diagnosis makes me a bad friend

Believe it or not; sometimes I forget I am sick.   I forget that my body doesn’t allow me to do certain things or multiple things per day. I forget that a walk into the store to grab milk, may be the only thing I can do today or that driving a short distance can take… Continue reading RSVP: No. When my diagnosis makes me a bad friend

Coping Tools · CRPS/RSD · Dealing with Pain

10 things I wish I had known about CRPS/RSD when I was first diagnosed

I remember the very first time one of my doctors mumbled the letters RSD as she tried to demystify why my feet would not heal and why I was in excrutiating pain. The letters themselves scared me. She said it was rare and that I probably didn’t have it. Weeks later another specialist confirmed I… Continue reading 10 things I wish I had known about CRPS/RSD when I was first diagnosed

Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain · Uncategorized

#1daywithoutpain – what would you do?

My good friend Genevieve and I were chatting last Friday night as both of us were at home due to ongoing battle with pain. I watched out the window as couples and groups of people gravitated towards the free Bluegrass concert that was held on our town’s Greenway. I longed to be one of those… Continue reading #1daywithoutpain – what would you do?