Chronic Illness · Coping Tools · Mindful Mondays

Mindful Mondays: The Angry side of Pain

Mindful Mondays: The Angry Side of Pain I tend to get irritable when I am in significant pain.  Everything bothers me as I become hypersensitive to the environment around me.  I am generally a very laid back person and I don’t often get my feathers ruffled.  I tend to let things go and not worry about… Continue reading Mindful Mondays: The Angry side of Pain

Coping Tools · CRPS/RSD · Dealing with Pain · Mindful Mondays

Mindful Mondays: Minding the Pain

Chances are if you follow my blog you may struggle with some type of chronic pain disorder (or you are an awesome supportive friend!).  In the past few years as I have been dealing with my own painful diagnosis, I have found that most people in my life have some sort of relationship with chronic… Continue reading Mindful Mondays: Minding the Pain

Chronic Illness · CRPS/RSD · Dealing with Pain · Uncategorized

Things I have learned from CRPS in 39 days (after joining a gym)

CRPS is such an awful and mysterious disease.  It affects each of us different and what may help one day will not help the next.  This is in no way suggesting that if you suffer with CRPS that you should go out and join a gym. I am also not suggesting that I have all… Continue reading Things I have learned from CRPS in 39 days (after joining a gym)

CRPS/RSD · Writings

Strong. Fierce. Me.

So the insurance had said no to a recent request for a Ketamine Infusion and apparently the medical/insurance world closes down during the holidays. As you know, I was devastated upon hearing that news. I was in fear of the unknown and felt that so many things were out of my control. (Read more here).… Continue reading Strong. Fierce. Me.

Coping Tools · CRPS/RSD

Dear Warrior

Dear Warrior, I see you tonight as the moon rises and the world settles down to sleep. I see you lying ever so quiet in your most comfortable spot, trying to be just that… comfortable. But for many, the comfort does not come and neither will sleep. The fire within our body ramps up as… Continue reading Dear Warrior

Uncategorized

When My Happily Ever After Couldn’t Survive the Storm

My life is a giant shit storm right now. I haven’t written lately because facing these painful realities are sometimes more painful than the CRPS itself. This evening I decided to face my monsters and put on a suit of courage. I have to write to process what is happening with the destruction of my… Continue reading When My Happily Ever After Couldn’t Survive the Storm

Coping Tools · CRPS/RSD · Dealing with Pain · Relationships

RSVP: No. When my diagnosis makes me a bad friend

Believe it or not; sometimes I forget I am sick.   I forget that my body doesn’t allow me to do certain things or multiple things per day. I forget that a walk into the store to grab milk, may be the only thing I can do today or that driving a short distance can take… Continue reading RSVP: No. When my diagnosis makes me a bad friend

Coping Tools · CRPS/RSD · Dealing with Pain

10 things I wish I had known about CRPS/RSD when I was first diagnosed

I remember the very first time one of my doctors mumbled the letters RSD as she tried to demystify why my feet would not heal and why I was in excrutiating pain. The letters themselves scared me. She said it was rare and that I probably didn’t have it. Weeks later another specialist confirmed I… Continue reading 10 things I wish I had known about CRPS/RSD when I was first diagnosed

Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain · Mindful Mondays

Should-ing Vs. Chronic Illness & Pain

Hello there and thank you for joining me for Mindful Monday. Last week I wrote Part I about The Dangers of Should-ing all over Yourself & asked readers to notice the “shoulds” that were unhelpful in their own lives and toss them to the side.  The intention of this Mindful Monday is to improve awareness… Continue reading Should-ing Vs. Chronic Illness & Pain

Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain · Uncategorized

#1daywithoutpain – what would you do?

My good friend Genevieve and I were chatting last Friday night as both of us were at home due to ongoing battle with pain. I watched out the window as couples and groups of people gravitated towards the free Bluegrass concert that was held on our town’s Greenway. I longed to be one of those… Continue reading #1daywithoutpain – what would you do?