Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain

When warriors cry

The pain is blinding today. I can’t see clearly & sounds from around the room vibrate through my body, setting off flares throughout my nervous system.  It changes from moment to moment. And as I get use to the burning sensation it manifests into a stabbing – pulsating pain. My nerves are jumping. Literally. My… Continue reading When warriors cry

Chronic Illness · Coping Tools · CRPS/RSD · Ketamine

What to bring to your Ketamine Infusion

Medications: Bring your medications in the original bottle with you. The hospital will give you their own meds from pharmacy but they may not have EVERY medication that you take. Medications that are compounded (for example my low dose naltrexone) are given to the dr and orders are written for to take this medication. MUST… Continue reading What to bring to your Ketamine Infusion

Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain

the invisible war that changed my life.

the invisible war I sat in the small medical exam room at a hospital in Boston while the Specialist told me “Well, when you smell a rat it is usually a rat, this Rat is RSD.”  Suddenly there I was, speechless, dumbfounded. Years of relentless pain and not knowing what was wrong with my body,… Continue reading the invisible war that changed my life.