Chronic Illness · Coping Tools · Mental Health · Mindful Mondays · Uncategorized

Mindful Monday

Mindfulness Based Stress Reduction Today is the kick off of  Mindful Mondays! This idea came to me as I was meditating one evening and it seemed to resonate with me. Every Monday I plan to write about a topic and share how having a mindful practice can help center your life & ultimately give you… Continue reading Mindful Monday

Chronic Illness · CRPS/RSD · Dealing with Pain · Uncategorized

5 years ago today…

Since I woke up this morning, this day has felt odd.  The skies were angry and storms passed through every hour, darkening the sky to a nighttime gray.  The rain was heavy, furious as it fell creating a calming yet aggressive presence on our tin roof.  The winds sliced through the trees bringing branches down… Continue reading 5 years ago today…

Chronic Illness · Coping Tools · CRPS/RSD · Mindful Mondays

Today I’m grateful

Today I am trying to focus on the things that are going well instead of living in fear of tomorrow.  Science tells us that when we remember our gratitude, we begin to build new highways for our thoughts and we overcome fear & negative thinking. Today I spent time in Meditation for this reason.  It… Continue reading Today I’m grateful

Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain · Uncategorized

I’m strong but I am scared

I am writing today because I am scared. It’s been 23 days since my toenail removal surgery and 5 day inpatient stay at University of Virginia Hospital. I know what you are thinking… a toenail removal surgery? Seriously? 5 days in the hospital for a toenail removal? Yes..yes, I am being serious. As you all… Continue reading I’m strong but I am scared

Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain

When warriors cry

The pain is blinding today. I can’t see clearly & sounds from around the room vibrate through my body, setting off flares throughout my nervous system.  It changes from moment to moment. And as I get use to the burning sensation it manifests into a stabbing – pulsating pain. My nerves are jumping. Literally. My… Continue reading When warriors cry

Chronic Illness · Coping Tools · CRPS/RSD · Ketamine

What to bring to your Ketamine Infusion

Medications: Bring your medications in the original bottle with you. The hospital will give you their own meds from pharmacy but they may not have EVERY medication that you take. Medications that are compounded (for example my low dose naltrexone) are given to the dr and orders are written for to take this medication. MUST… Continue reading What to bring to your Ketamine Infusion

Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain

the invisible war that changed my life.

the invisible war I sat in the small medical exam room at a hospital in Boston while the Specialist told me “Well, when you smell a rat it is usually a rat, this Rat is RSD.”  Suddenly there I was, speechless, dumbfounded. Years of relentless pain and not knowing what was wrong with my body,… Continue reading the invisible war that changed my life.