Coping Tools · CRPS/RSD

Dear Warrior


Dear Warrior,

I see you tonight as the moon rises and the world settles down to sleep. I see you lying ever so quiet in your most comfortable spot, trying to be just that… comfortable. But for many, the comfort does not come and neither will sleep. The fire within our body ramps up as the moon climbs higher into the sky. It seems like night time is always the worst.

I hear the words you want to scream and the pleas that will never leave your lips. You don’t want anything exceptional, just a few hours of respite from the beast. Your body needs rest and your mind needs peace from wearing the heavy mask of hiding the pain day after day.

I hear you dear Warrior as you cry silently into your pillow, willing the fire to burn out. I hear the tears you do not cry as they also sit heavily on my own heart. The tears aren’t those of the weak but those who fight to survive every moment. They are tears of strength. Tears of War. Tears of triumph.

I feel you, such a brave & courageous soul. When my own body revolts against me, I close my eyes and remember that you are somewhere out there and that I am not alone in my pain. And you my friend are not alone either. It is not the pain or the destruction of the disease that brings us together. It is the resiliency, the strength and the perseverance that ties us to one another.

I admire your grace and you continue to inspire me to keep going, to keep fighting. Every. Single. Day. You remind me that the pain is ruthless but that it is more importantly, temporary. For even a flare will burn out. Keep throwing punches knowing that your nerves will calm and your body will once again be able to breathe. You will be able to move again, be you and open your heart for laughter. Hold on to those moments my dear friend. Hold on to sunny days, the laughter & the love for these are the things that will guide you through even the darkest night and the cruelest flare.

Remember my friend that you cannot drown because you have learned how to swim. Even though you are tired from fighting battles no one knows anything about, know this; You are a warrior. You are loved. You matter. And most importantly You are not your pain. You are something so much more and so much bigger than this disease. Keep fighting.

As always, Much Metta,


5 thoughts on “Dear Warrior

  1. Hi Kelly, I have had CRPS for 5 years. Your writing is Amazing. Just what I’m going through. I have read your letters 3 times and will keep up with them. I have 2 daughters and a husband who was very helpful till I just found out I have been a real problem to them. I never realized it tomorrow is my birthday, and I have lost my whole family. Yes, CRPS STINKS! My girls have there own families, I will miss my Grandchildren so Much! I am staying with my parents now, I can’t believe this has happened. But I guess it was to much for them. The girls told there father they feel so sorry for him…….I wish they would spend a day in my body. Thank you for your wonderful word’s. You really don’t know how many people you are really helping

    Liked by 1 person

  2. Kelly,thank you for your letter. For the first time I feel in not alone. I’m 61yrs old with CRSP. I was diagnosed 2013,but before that it took 2yrs to confirm I wasn’t going crazy or that it was all in my head. CRPS really sucks I hate the thought of how much longer I can still continue to live with pain everyday,every minute of every second. The pain draws so so much energy that I’m running out faster then I can regenerate my strength. Reading your letter and knowing I’m not alone gives me some hope thank you for your wonderful encouraging words


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